Outputs

Recent Publications

2024

• How to co-create content moderation policies: The case of the AutSPACEs project G Aitkenhead, S Fantoni, J Scott, S Batchelor, H Duncan, D Llewellyn-Jones, C Mole, O Smith, M Stoffel, R Taylor, K Whitaker, B Greshake Tzovaras. Data & Policy
• Co-Designing a wiki-based community knowledge management system for personal science K Kloppenborg, M Ball, S Jonas, GI Wolf, B Greshake Tzovaras. arXiv preprint
• Sections in the Open Science Meets Citizen Science section of the Citizen Science for Research Libraries Guide:
  • Introduction - B Greshake Tzovaras
  • Quickstart Guide - B Greshake Tzovaras
  • Implementing Open Science Practices into a Citizen Science Project - B Greshake Tzovaras
  • Citizen Science using Personal Data - B Greshake Tzovaras

2023

• “One button in my pocket instead of the smartphone”: A methodological assemblage connecting self-research and autoethnography in a digital disengagement study E Senabre Hidalgo, B Greshake Tzovaras Methodological Innovations
• Hypothesis-free phenotype prediction within a genetics-first framework C Lu, J Zaucha, R Gam, H Fang, B Smithers, ME Oates, M Bernabe-Rubio, J Williams, N Zelenka, AP Pandurangan, H Tandon, H Shihab, R Kalaivani, M Sung, AJ Sadar, B Greshake Tzovaras, D Danovi, J Gough Nature communications
• An epistemology for democratic citizen science J Jaeger, C Masselot, B Greshake Tzovaras, E Senabre Hidalgo, M Haklay, M Santolini. Royal Society Open Science
• The transdisciplinary potential of citizen science A Albert, M Haklay, F Moustard, S Hecker, B Greshake Tzovaras, A Linder. In Handbook of Transdisciplinarity: Global Perspectives
• Citizen Science for Health: an international survey on its characteristics and enabling factors B Greshake Tzovaras, A Albert, J van Laer, S Wildevuur, M de Groot, L den Broeder, I Bonhoure, J Magalhaes, S Mas Assens, E Garcia Torrens, B Imre, E Covernton. SocArXiv preprint

2022

• Shared motivations, goals and values in the practice of personal science - A community perspective on self-tracking for empirical knowledge E Senabre Hidalgo, M Ball, M Opoix, B Greshake Tzovaras Humanities and Social Sciences Communications
• Co-Immune: a case study on open innovation for vaccination hesitancy and access. CM Masselot, B Greshake Tzovaras, CLB Graham, G Finnegan, R Jeyaram, I Vitali, TE Landrain, M Santolini JMIR Journal of Participatory Medicine
• Community review: a robust and scalable selection system for resource allocation within open science and innovation communities CLB Graham, TE Landrain, A Vjestica, M Masselot, E Lawton, L Blondel, L Haenel, B Greshake Tzovaras, M Santolini bioRxiv preprint
• iNaturalist citizen science community during City Nature Challenge: new computational approach for analysis of user activity L Tupikina, F Schlosser, V Voskresenskii, K Kloppenborg, F Lopze, A Mariz, A Mogilevskaja, M Haklay, B Greshake Tzovaras arXiv preprint

2021

• Detection of Spatiotemporal Clusters of COVID-19–Associated Symptoms and Prevention Using a Participatory Surveillance App: Protocol for the @choum Study D De Ridder, AJ Loizeau, JS Sandoval, F Ehrler, M Perrier, A Ritch, G Violot, M Santolini, B Greshake Tzovaras, S Stringhini, L Kaiser, JF Pradeau, S Joost, I Guessous JMIR Research Protocols
• Quantified Flu: an individual-centered approach to gaining sickness-related insights from wearable data. B Greshake Tzovaras, E Senabre Hidalgo, K Alexiou, L Baldy, B Morane, I Bussod, M Fribourg, K Wac, G Wolf, M Ball Journal of Medical Internet Research
• Contours of citizen science: a vignette study. M Haklay, D Fraisl, B Greshake Tzovaras, S Hecker, M Gold, G Hager, L Ceccaroni, B Kieslinger, U Wehn, S Woods, C Nold, B Balazs, M Mazzonetto, S Rüfenacht, L Shanley, K Wagenknecht, A Motion, A Sforzi, D Riemenschneider, D Dörler, F Heigl, T Schaefer, A Lindner, M Weißpflug, M Mačiuliene, K Vohland Royal Society Open Science
• Empowering grassroots innovation to accelerate biomedical research B Greshake Tzovaras, M Rera, EH Wintermute, K Kloppenborg, J Ferry-Danini, G Aidelberg, R Aronoff, D Misevic PLOS Biology
• A survey of direct-to-consumer genotype data, and quality control tool (GenomePrep) for research. C Lu, B Greshake Tzovaras, J Gough Computational and Structural Biotechnology Journal
• Peer Production Practices: Design Strategies in Online Citizen Science Platforms. K Kloppenborg, M Ball, B Greshake Tzovaras SocArXiv preprint
• A Framework for Assessing the Commons Qualities of Citizen Science: Comparative Analysis of Five Digital Platforms . M Fuster Morell, A Cigarini, E Senabre Hidalgo SocArXiv preprint
• Galileo: Citizen-led Experimentation Using a Social Computing System. V Pandey, T Koul, C Yang, D McDonald, M Ball, B Greshake Tzovaras, R Knight, S Klemmer CHI ‘21: Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems
• Re-analysis of genetic risks for Chronic Fatigue Syndrome from 23andMe data finds few remain. FL Bedford, B Greshake Tzovaras Frontiers in Pediatrics
• Participation and Co-creation in Citizen Science. E Senabre Hidalgo, J Perelló, F Becker, I Bonhoure, M Legris, A Cigarini. In: The Science of Citizen Science, Springer
• Citizen Science, Health, and Environmental Justice. L Ceccaroni, SM Woods, J Sprinks, S Wilson, EM Faustman, A Bonn, B Greshake Tzovaras, L Subirats, AH Kimura. In: The Science of Citizen Science, Springer

2020

• Introducing Massively Open Online Paper (MOOPs). JP Tennant N Bielczyk, B Greshake Tzovaras, P Masuzzo, T Steiner KULA: Knowledge creation, dissemination, and preservation studies
• What Is in Umbilicaria pustulata? A Metagenomic Approach to Reconstruct the Holo-Genome of a Lichen. B Greshake Tzovaras, FHID Segers, A Bicker, F Dal Grande, J Otte, SY Anvar, T Hankeln, I Schmitt, I Ebersberger Genome Biology and Evolution
• Emerging health data platforms: From individual control to collective data governance. T Kariotis, M Price Ball, B Greshake Tzovaras, S Dennis, T Sahama, C Johnston, H Almond, A Borda Data & Policy
• Phenotype prediction from genome-wide genotyping data: a crowdsourcing experiment. O Naret, D Baranger, B Greshake Tzovaras, SP Mohanty, M Salathe, J Fellay BioRxiv preprint

2019

• Open Humans: A platform for participant-centered research and personal data exploration. B Greshake Tzovaras, M Angrist, K Arvai, M Dulaney, V Estrada-Galiñanes, B Gunderson, T Head, D Lewis, O Nov, O Shaer, A Tzovara, J Bobe, M Price Ball GigaScience
• The personal data is political. B Greshake Tzovaras, A Tzovara The Ethics of Medical Data Donation

2018

• Dopaminergic genes are associated with both directed and random exploration. SJ Gershman, B Greshake Tzovaras Neuropsychologia
• Genes wide open: Data sharing and the social gradient of genomic privacy. T Haeusermann, M Fadda, A Blasimme, B Greshake Tzovaras, E Vayena AJOB Empirical Bioethics
• PhyloProfile: dynamic visualization and exploration of multi-layered phylogenetic profiles. NV Tran, B Greshake Tzovaras, I Ebersberger Bioinformatics
• Sci-Hub provides access to nearly all scholarly literature. DS Himmelstein, AR Romero, JG Levernier, TA Munro, SR McLaughlin, B Greshake Tzovaras, Casey S Greene ELife

Software & Materials

• Open Science Meets Citizen Science In: The Citizen Science for Research Libraries Guide. Edited by: B Greshake Tzovaras
• CRI Open Science Course materials (Wikiversity). E Senabre Hidalgo, B Greshake Tzovaras, I Atal, A Lindner
• Cardsort, python package to analyse card sorting data. K Kloppenborg

We are in the process of creating additional tools and non-software materials for workshops and teaching. Until then you can find the software and materials that we are working on at GitHub.

Teaching

Our team is involved in teaching a variety of courses at CRI across the different study programs and levels. Among others those included:

• Principles of Open Science (M1 course)
• Student COllaborative REsearch (SCORE) (L2 course)
• Critical Analysis of a Research Article (M2 course)
• Creating Interdisciplinary Research Project (M2/PhD course)